A better life for Scarlet
Jenny and Tom Wagner are like most parents. They want what is best for their daughter. In their case though, their hopes are a little more basic.
Their 3-year-old daughter, Scarlet, was born with an extremely rare genetic disorder called Schinzel Giedion Syndrome. The condition is complex and involves epilepsy, kidney disease, severe developmental delay, breathing and feeding issues and physical abnormalities.